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Take Action Now! Help Protect and Preserve the Medicaid Program for People with Epilepsy

One of the most important public policy votes that will affect people with epilepsy and other disabilities, their families, and the poorest, most vulnerable Americans is scheduled to take place on February 1, 2006. The U.S. House of Representatives must vote again on the Budget Reconciliation Conference Report, which includes almost $40 billion in cuts over five years to programs that provide needed services and protections such as Medicaid, welfare, Supplemental Security Income (SSI) and others.

You may recall that the House already approved this conference report by a 212-206 vote that occurred at 6:00 a.m. on December 19, 2005. It is important to note that the Representatives only had about 4 hours in the middle of the night to review this 700-plus page bill. When the Senate voted on the same report on December 21, 2005, they amended the bill thus making it necessary for the House to vote on the bill again.

The revote is currently scheduled for February 1, 2006, one day after the Congress returns from recess. It is very rare for a reconciliation bill to be sent back for a second vote and gives the health and disability communities, amongst others, a wonderful opportunity to ask House members to change their minds and vote AGAINST this bill which will hurt Medicaid beneficiaries.

Your help is needed and we must act quickly!

Call Your House Member Now!

A toll free number has once again been made available for your use by the American Friends Service Committee. The number is 1-800-426-8073. Call each member of the House of Representatives of your state or use the attached target list. It doesn't hurt to call all House Members to urge their NO vote.

See What's at Stake for a targeted list of House members.

The message:

Please vote NO on the Budget Reconciliation conference report. This bill will cut programs and services needed by people with disabilities, chronic health conditions and those with low incomes.

Join Local Activities

Activities are happening at the national and local levels. A coordinated effort to stop this bill has been organized by a group called the Emergency Campaign for America's Priorities (ECAP) http://www.actnow.org. This group is coordinating visits to key voters on Capitol Hill as well as activities at the local level. Religious groups, unions, student groups and disability groups are coming together to attend vigils in front of Representative's district offices and holding Town Hall meetings to ask Representatives how they plan to vote and to explain how their vote will impact the lives of people in their communities. Stay alert for these activities! If you would like the phone number of the local coordinator for these activities, please contact the Epilepsy Foundation's Government Affairs office.

Sample Letter for Campaign

Subject: Help Save Medicaid from FY 2006 Budget Cuts

Dear [ Decision Maker ] ,

One of the most important public policy votes that will affect people with epilepsy and other disabilities, their families, and the poorest, most vulnerable Americans is scheduled to take place on February 1, 2006. I urge you to vote NO on the Budget Reconciliation Conference Report, which includes almost $40 billion in cuts over five years to programs that provide needed services and protections such as Medicaid, welfare, Supplemental Security Income (SSI) and others.

The provisions of this bill will hurt Medicaid beneficiaries, who are among your poorest and most vulnerable constituents.

There are a number of troubling provisions in this bill that will make it harder for people on welfare to care for their kids with disabilities, for students to get needed loans for school, and for people to be able to give money to the charities they support. The provision in the bill that is most damaging, however, is Section 6086, entitled "Expand Access to Home and Community-Based Services for the Elderly and Disabled." While this title sounds good, the provision would actually do more harm than good and be a step backward in the effort to provide community services to people with disabilities.

Protecting and preserving Medicaid is a top priority for me and my family. We join the Emergency Campaign for America?s Priorities (ECAP) and the Epilepsy Foundation in asking that you vote NO on the Budget Reconciliation conference report.

Sincerely,

Campaign Launched:
January 19, 2006



Background Information

FY 2006 Budget: The Battle to Save Medicaid

Why is this bill so bad for people with epilepsy or other disabilities?

There are a number of troubling provisions in this bill that will make it harder for people on welfare to care for their kids with disabilities, for students to get needed loans for school, and for people to be able to give money to the charities they support. The provision in the bill that is most damaging, however, is Section 6086, entitled "Expand Access to Home and Community-Based Services for the Elderly and Disabled." While this title sounds good, the provision would actually do more harm than good and be a step backward in the effort to provide community services to people with disabilities.

A major part of the Medicaid law is the Home and Community Based Services (HCBS) program. The HCBS program traditionally has been a waiver process that allows states to move people with disabilities from institutional settings to community-based settings. This bill would make changes to the HCBS waiver as we know it and could seriously limit the services that people could receive in the community.

The following things are likely to happen if this bill passes:

  • Fewer people will get community services – caps could be placed on the number of people living in the community and waiting lists will keep growing. Services could be limited to certain areas of the state.
  • It will become harder to move people out of institutions and into the community.
  • Cost-sharing can occur – this is one of the most damaging provisions in this bill! Governors will be allowed to require that people, even those below 100 percent of the federal poverty level (approximately $800.00 per month for an individual) to have to pay a co-pay for medical services.
  • For example, an SSI beneficiary with severe epilepsy and cerebral palsy who lives in a group home could have his/her entire monthly personal needs allowance depleted by having to pay for Medicaid services such as doctor’s visits, prescription drugs, therapy services, wheelchairs etc. This would make it far more difficult for this person to meet his/her basic needs like paying for dental care, eyeglasses, hearing aids or even things like toiletries or transportation to get to work or school. Certainly there will be no money left over for leisure time activities like seeing a movie or going on a trip.
  • Passage of this bill will also include the reauthorization of the Temporary Assistance for Needy Families (TANF) bill. The version of the TANF bill included does not contain important disability provisions/protections that were included in the Senate version of the bill. This reauthorization language would require people on TANF to work longer hours without the needed child care support and would not allow mothers of children with disabilities to count taking care of that child as work or family members to count taking care of their family member with a disability as work. For those who cannot meet the new work requirements of this law, there will be steep sanctions and no safety net.

The only way to prevent these damaging provisions from becoming law is to defeat this bill. Protecting and preserving Medicaid is a top priority for the Epilepsy Foundation and we ask that you work with us to save these provisions that help so many people. As always, please contact us if you have any questions or need additional assistance in taking action.

Budget Reconciliation House Targets

Arkansas

Boozman (2)

California

Bono (2)

Connecticut

Johnson (1)
Shays (1)
Simmons (1)

Delaware

Castle (2)

Florida

L. Diaz-Balart (2)
Foley (2)
Ros-Lehtinen (2)
Brown-Waite (2)

Georgia

Gingrey (2)

Idaho

Otter (2)
Simpson (2)

Illinois

Johnson (1)
Shimkus (2)

Indiana

Buyer (1)

Iowa

Leach (1)

Maryland

Gilchrest (2)

Michigan

Ehlers (2)
McCotter (2)
Miller (2)
Schwarz (2)
Upton (2)

Minnesota

Ramstad (1)
Gutknect (2)

Missouri

Emerson (2)

Montana

Rehberg (2)

New Jersey

Smith (1)
LoBiondo (2)
Saxton (2)

New Mexico

Wilson (1)

New York

McHugh (1)
Sweeney (1)
Boelhert (2)
Fossella (2)
Kelly (2)
Kuhl (2)
Walsh (2)

North Carolina

Jones (1)
Hayes (2)
Coble (2)

Ohio

LaTourette (1)
Ney (1)
Gillmor (2)
Regula (2)

Pennsylvania

Gerlach (1)
Dent (2)
Fitzpatrick (2)
Platts (2)
Weldon (2)

Texas

Paul (1)

Virginia

J.A. Davis (2)
T. Davis (2)

Washington

Reichert (2)

West Virginia

Capito (2)

Wisconsin

Green (2)

(1) Designates a primary target
(2)Designates a secondary target

About the Budget Process

Voices for Children, an advocacy organization, has developed a guide to how the budget process works. Visit their website to review the document.

Note: The budget process guide is in PDF format. You may need to download the free Adobe Acrobat Reader to view it.